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Religious sisters’ pioneer work at Carville continues with cutting-edge research, care

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American Catholic Tribune Mar 18, 2024

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Very Rev. Jamin S. David, J.C.L., V.G. | Diocese of Baton Rouge

One hundred and thirty years ago, the first seven leprosy patients arrived at Indian Camp Plantation in Carville, Louisiana, marking the beginning of a significant chapter in the treatment and understanding of Hansen's disease. The Daughters of Charity of St. Vincent de Paul arrived in 1896 to staff the leprosy home, providing care and compassion to those who were often abandoned by society.

Speaking about the dedication of the Daughters of Charity, Elizabeth Schexnyder, curator of the Carville Hansen’s Disease Museum, highlighted the selfless commitment of the sisters, stating, “It was an era when the stigma of leprosy was much greater than it is today, and when patients with the disease were greatly feared because of the unknown risk of contracting the disease. The stigma was such that an assignment to Carville was the only one that the sisters were allowed to turn down. Not one did.”

The National Hansen’s Disease Program (NHDP) in Baton Rouge continues the pioneering research and care initiated by the sisters. Betsy Wilks, clinical branch chief at NHDP, emphasized the comprehensive approach taken by the program, stating, “There is a care team overseeing the overall wellbeing of the patients, including a physician, nurse, occupational therapist, pharmacist and social worker.”

Scott Figarola, an occupational therapist at NHDP, highlighted the importance of early detection and intervention in preventing severe damage from leprosy, stating, “Part of my job is to help get them up and running again.” The program focuses on providing cutting-edge research, medical treatment, rehabilitation services, and psychological support to Hansen's disease patients.

Dr. Linda Adams, chief of the laboratory research branch of NHDP, underlined the ongoing research and development efforts on the disease, while Scott McGrew, NHDP public health outreach coordinator, emphasized that Hansen's disease responds well to treatment with antibiotics and can be cured if diagnosed and treated early.

The NHDP not only focuses on medical treatment but also aims to reduce misconceptions and stigma surrounding leprosy. McGrew highlighted the program's efforts to promote inclusivity and normalize the lives of Hansen’s patients, stating, “The foundation of excellent care they provide Hansen’s patients is built upon the courageous sacrifices and research done by the Daughters of Charity at Carville.”

In conclusion, the legacy of the Daughters of Charity at Carville lives on through the pioneering research and compassionate care provided by the NHDP at the National Hansen’s Disease Program Clinical Center in Baton Rouge. Their dedication to eradicating misconceptions, providing top-notch care, and advancing the treatment of Hansen's disease continues to impact the lives of patients and the field of leprosy research.

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